My daughter also has vcfs she is now almost 15. I can tell you from experiece it gets better 11 is a tough age tring to fit in and make friends without a disability is hard enough  never mind  puberty .Looking back there were days I don t know how I made through.  I know it may not seem like it now but it will get better it may take a little longer but  she will mature and grow and one  day she may surprise you everything you have tought her you will find some out it stuck . She may be able to handle more than you think. I don' t  know your daughter but I have gone though similer experince. with lots of pactice and lots help  it will get easier. Who knows if she will even want or be able to handle children but I think that is her deciesion to make someday as for now when you think the time is right you should put her on some birth control and as she matures and can talk more about how to handle situations with boys.I know this can be a tough time.I understand what you are going through. Hang in there it will get better I'm not saying you won't have challeges along the way but from my experience it has gotten a little easier. I wish you and your  daughter the best and if you would ever like to talk i can share  some of what we have gone through with you. 

Are you asking this question because you are afraid that a potential grandchild will have 22q?  Or is it because you fear for your daughter's ability to ever be able to care for a child?  While I am not privy to your daughter's specific intellectual abilities or decision-making capabilities, do you really want to permanently squash any possibility that she may be able to have a child in the future?  I am the mother of a 3 month old daughter with 22q, and from what I understand, anyone with this condition has a 50% chance of passing it on to their offspring.  There have been leaps and bounds made in fertility treatments, and it is possible to use in vitro fertilization in order to avoid passing down the deletion.

That being said, I can totally understand your fears as your daughter is beginning puberty, has a lowered IQ level.  If you feel that she may wind up being talked into sex, certainly you have an obligation to do your best to keep her out of that situation, but as all parents know we can't be there 24/7.  In the meantime, why not get her on some birth control?  

Also just wanted to say that Quinn had a great idea with the IUD, (she won't have to remember to take pills every day, etc.) but there is also the depo shot to consider too, which would also be totally under your control.

Ever seen the movie 'I am Sam'?  It may change your mind about intellectual ability and child care.

hi there, I can readily understand your concerns. I have read the other answers that you got and would just like to add some points. Even if she does pass through this 'phase' there are still serious issues to consider. My daughter is now 27 and I have been asked and asked myself this question many times. I always answer by saying, "where would the burden of care fall if she was to have a child", is there an adequate support network available? My experience of raising her is that there isn't and that yes, having a grandchild with vcfs would disturb me greatly, I had to use all my resources, still am, to raise her. To the mum with the 3 month/year old? wait until your'e another 15 - 20 years down the line and you're getting older. And on the subject of contraception, an IUD will not prevent STD's and the Depo? not a good idea if there are calcium and Vit D issues. In-vitro is always an option but where does that leave the 'normal' child, will they end up caring for the parent?

Whatever you decide to do is the right decision for you, in your circumstances and with the resources you have available to you. I wish you well.