Are there social gatherings for adults with VCFS to meet others like them?
I'm 23 years old, living in the Boston area with my family and was wondering if events like this exist? I have a minor case, which still greatly affects my health and the way I live, and have never really had the opportunity to meet others like me. Does anyone have any information or ideas about this? Thanks!
There will be a gathering of adults with VCFS at the annual meeting of The Velo-Cardio-Facial Syndrome Educational Foundation in Salt Lake City from July 16 through 18. If you are interested in learning more about this, send me an email, or contact the Executive Director of the Foundation, Dr. Karen Golding-Kushner, at kgkushner@vcfsef.org
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Dr. Robert Shprintzen, Director
Professor of Otolaryngology
Professor of Pediatrics
VCFS International Center
Upstate Medical University
Syracuse, NY, USA
Center web sight: www.vcfscenter.org
Center email: vcfs@upstate.edu<!--EndFragment-->- Report Abuse
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