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All Blogs Relating To "VCFS"

maddoxmama (Profile)

posted 08/20/2011, comments (4)

My 4 year old diagnosed with VCFS

Hello, all!      My son, Maddox is four years old, and was recently diagnosed with VCFS.  Maddox has articulation problems that have not improved significantly despite years of speech therapy. We finally realized that his hypernasal tone may indicate a palate issue, which was confimed when we visited a specialist at... Read moreChevron

Quinn Bradlee (Profile)

posted 07/22/2011, comments (3)

VCFS Conference in New Jersey

I hope everybody who attended the conference last weekend in New Jersey had a great time. I learned a lot about how many VCFS conferences are now held all over world, including the US and Europe.    Pari and I participated in the conference on a panel about marriage.  We, along with another couple, explained what it was like being... Read moreChevron

AnneStalker (Profile)

posted 07/21/2011, comments (0)

Mission 22q of Nebraska is Planning the 2nd Annual Wine-Tasting Fundraiser at James Arthur Vineyards

Mission 22q is planning the 2nd Annual Wine-Tasting Fundraiser.  It is set for September 8, 2011 from 6:30 to 8:30.  More details to come!    

loving mother (Profile)

posted 07/17/2011, comments (0)

My sons story

My son was diagnosed at age 6 with VCFS.  He will be eighteen in a few weeks and has one more year of high school left.  He is presently struggling with social skills amongst his peers and with depression.  I struggle with letting go and feeling isolated in others not understanding our struggles. I hope this website will give us... Read moreChevron

AnneStalker (Profile)

posted 07/12/2011, comments (0)

Support Groups

I started the Nebraska VCFS support group (Mission 22q) back in 1998, and I've had many people tell me what a wonderful thing I've done.  Problem is, I did it for selfish reasons.  I wanted a support group and there was not one in Nebraska.  Yes, it's been a lot of work, but it's been rewarding.  I've met and worked with the... Read moreChevron

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