All Entries to the FriendsOfQuinn Blog Contest

posted 04/24/2009, comment (1)

Learning more and more

No one ever prepares you for parenthood and when you have an LD child no one can ever prepare you for the walls and walls that are put in front of you. Not only do you feel the pain of seeing your child struggle, you are judged by adults and some educators as a lax parent. Being told that if you were stricter and stayed "On top Of them" the... Read more

posted 04/23/2009, comments (2)

The Grateful Ned

Almost nineteen years ago I found out I was pregnant with my second child.  At twenty weeks I was told I was having a second son.  What were we going to name him?  N was the given letter as he was being named for his grandfather.  We wanted to make sure he stood out from the rest of his peers so we named him Ned. I knew... Read more

posted 04/22/2009, comments (2)

Life and Learning with Charley

Dear Quinn and Friends, I am the older sister of Charley, a 35 year-old who was diagnosed with DiGeorge Syndrome in his early twenties.  Charley has endured 2 open heart surgeries, being in a coma and now faces the fight of his live... heart failure.  Charley may be considered one of the "older generation" when it comes to DiGeorge... Read more

posted 04/22/2009, comments (2)

Arch Angel

My Daughter is 9 years old and has VCFS. I am constantly working with her to ensure that she gets the help and treatment she needs. What I want to give her most is the chance to be just like all the other kids. Even though those around us don't see her as different there are a few little things that make her life a little harder in society. Living... Read more

posted 04/22/2009, comments (2)

My Rachel, My Hero

She is nearly 18 and intellectually disabled in the moderate range. She was born only 3 weeks early, but not expected to live after 5 weeks of intensive care treatment. She was 5 weeks and 3 days old when, on the hospital staff advice' our local priest,  Father Jamie came to baptise her in the hospital.  I asked him what I needed to do... Read more