Quinnundrum

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by QuinnMama
Sunday, February 28, 2010

• Untitled Comment
  forjonah
  Sunday, February 28, 2010 at 06:36 PM

  Thank you so much for articulating so eloquently what is in my heart . My son has 22q11 deletion and is now almost 2.5 yrs old.  Sometimes I feel I am the only one who knows just how brilliant he is, for much of the time he only expresses all his abilities and  talents to me when we are alone , while being quiet and withdrawn with others.

   

  I too wish at times he would be just average, my heart aches for all the times  he will be labelled and judged . But I just know that there is such a wonderful and unique little person in there. It seems everytime I worry that he will never master the next step, despite all my efforts, he will just shock me one day doing it on his own in some random unpredictable moment, then give me this sly smile to watch for my reaction, knowing that I have been waiting for this .

   

  Thank you for sharing your experiences and you inspire me to be the best I can be for my own son.

   

  
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  re: Untitled Comment
  QuinnMama
  Sunday, February 28, 2010 at 07:15 PM

  Thanks so much for reading and for being in touch!

   

  I have no doubt that your son is brilliant and unique and absolutely set on unfolding

  and unfurling his wings in his own way and on his own time.  How lucky he is to have such an observant, supportive and loving mother! I look forward to hearing more about your journey together!

  Quinnmama 

  
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• extraordinary child...
  hopeful...
  Tuesday, March 02, 2010 at 10:09 AM

  Thank you, thank you, thank you! I cry as I write this. I was right there with you in the waiting rooms... observing the tart faces of the 'knowing' who have not yet tapped into the 'unknown'. I felt the heart wrenching pain of trying to receive the 'verdict' of what I came to doctor for in the first place. Yet, my very most inward being, crying out, "He is not your average Joe... there is a wonderful, intuitive, sensitive, 'in tune' person behind that garbled voice."

  Yes, it is true, he is not your 'average boy'. In fact, in many ways, as you described Quinn, he is above average.

  One day, on his way home from a store, he passed a boy with his mother in the parking lot. I was not there, so I do not know what the little boy was like, but he called out to my son. My son stopped what he was doing. He went over by the boy and stooped, taking off his hat and glasses so the boy could see his face. My son understood the child was different. He gave him special attention, talking kindly to him and shaking his hand. He said the boy's mother had tears in her eyes.

  My son told me about the story and said to me, "I wanted to take the time to show that boy attention. I understand what it is like to be a little different. I know his mother appreciated it."

  He also understood what it was like to long for attention and remain unnoticed, or perhaps even passed by. So, to take your own struggles and troubles and use them for the good of others, is outstanding. It surpasses obtaining a high IQ. This quality is in great need in the human race... and is indeed 'above average'.

  
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  re: extraordinary child...
  QuinnMama
  Tuesday, March 02, 2010 at 01:27 PM

  Dear Hopeful,

   

  I am so moved by your response, I too am crying as I write this!  THANK YOU for sharing your story - I'm sure you have many instances when your son has done something so profoundly human and compassionate and wise and wonderful that you knew beyond a doubt that he is exactly who he is meant to be and that what he has to offer the world is not to be measured by clipboards.  I celebrate every one of those moments with you and say a silent prayer of gratitude that you are this child's mother.

  Stay ever-hopeful and thank you for being in touch!

  
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