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Mother warrior from Indiana

by Mother warrior from Indiana
Thursday, April 23, 2009

Mother warrior from Indiana

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Quinn's Guide to Friendship, Dating and Self-Confidence

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Hi Quinn,

   I just watched The View and learned of this site.  My daughter is 2 and I have known that there is just something different about her all along.  In January of this year we were told of the possibility of a VCFS diagnosis only to learn after her genetic tes...

  • VCFS testing
    22qLife
    Thursday, April 23, 2009 at 08:11 AM

    Laura,

     

    Did they do a FISH test?  That will tell if there is a 22q11.2 deletion.....Also, from what I have been told, the deletion may be so small that it is not detected, but still possible to have it.  I know it is frustrating to you.  I feel that we got the diagnosis very early, but even in that few months, it seemed like forever of just wanting an explanation of why all these things were happening to my baby......I knew there was a bigger reason than just one problem after another. 

     

    Good luck!

    Laura N.


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