Katelyn my Joy

Related: VCFS

by kjustaminute
Monday, May 11, 2009

Katie is now 13 years old.  When she was an infant she was diagnosed with Caudel Regression Syndrom.  Later we found that VCFS was in her genetic makeup.  Katelyn has been a delight for us, she reminds us daily that it is the small things in life that really make a person happy.  With her love for all animals, bright smile and great attitude we can all learn from her. 

The LD is not to hard to deal with, but the mental illness can be a bit tricky.  We have to really look at the situation and determine if the medications are not working due to hormones, or due to hormones is the behavors happening.  While Katie is verbal, she is not very expressive with her communicational needs.  She can be a bit head strong at times, but can't all children? 

Today she came home due to feeling extremly tired.  After taking a five minute nap she is good to go.  Playing on the floor with the hampster.  I don't know if taking her back would be good or not.  Sometimes you just have to take a day to yourself to revamp.  She is not different in this either.

Our household is made up of mysef (Kelley/36),  Walt (hubby/39), Alisha (now 18), Robert (now 15, but living in a residential facility), Katelyn, Oasis (now 12), and Morgan (now 8).  With everyone going in different directions sometimes it is easy to loose Katelyn and her needs in the middle of it all.  We look at her smiling face and forget that she is not 13 in her mind, that she is LD/MR.  Katelyn is only aware of her differences by the students who point this out.