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Katelyn my Joy

by kjustaminute
Monday, May 11, 2009

kjustaminute

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Katie is now 13 years old.  When she was an infant she was diagnosed with Caudel Regression Syndrom.  Later we found that VCFS was in her genetic makeup.  Katelyn has been a delight for us, she reminds us daily that it is the small things in life that really make a person happy.&nbs...

  • Katie
    Eileen Bailey
    Wednesday, May 13, 2009 at 01:17 PM

    Kelley

     

    Thank you so much for sharing your story with us and I hope your daughter enjoyed her day off. You are so right, everyone needs one of those sometimes, a day to just do as you please, without the pressures of school (or work).

     

    It certainly sounds as if you have your hands full and a busy, busy household. Katelyn, I am sure, knows how much everyone loves her, even if her needs get pushed back sometimes. That happens in all families, with all children as it is impossible to meet the needs of everyone at all times. Sometimes, we just do the best we can and our children know that in the end, each one of them is important to us.

     

    Eileen


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