Information and opinions on Friends Of Quinn from trc7880 at FriendsOfQuinn.com. The HealthCentral Network, Inc. (www.HealthCentral.com) is one of the top health destinations on the Web, with more than 35 condition-specific, wellness and general health Web properties. http://communities.friendsofquinn.com/share/c/45200 http://communities.friendsofquinn.com/share/c/45200/rss self application/xml en-us 15 120 19 http://www.healthcentral.com/images/hc_logo_sm.gif http://communities.friendsofquinn.com/share/c/45200 http://communities.friendsofquinn.com/share/c/45200/1672/awareness-syndromes Tue, 06 Jul 2010 19:43:30 -0400 trc7880 Hey people what's up, this coming sat in Hanover Nh, is the Proudy a walk/bike for awareness for cancer, although I dont' have cancer I am riding the Proudy because I do at an early age have to get screened for certain cancers with 22q If your at all local and have the time I would for you to come and show your support and meet some of you I will be leaving between 6 am and 6 30 am and hope to finish around 1-2 at the latest. I'm biking the 100... http://communities.friendsofquinn.com/share/c/45200/1672/awareness-syndromes http://communities.friendsofquinn.com/share/c/45200/1554/awereness Tue, 20 Apr 2010 08:50:53 -0400 trc7880 Are there any forms of awareness out there for 22q I have searched and searched. My wife has nf and they have their own Enderance race team to help raise awareness and funs I'm a little saddened by this that hardly anything is being done for awareness for 22q If anyone knows of any programs out there or maybe would be interested in getting something going let me know I would like to help out somehow I'm doing 100 miles on my bike this... http://communities.friendsofquinn.com/share/c/45200/1554/awereness http://communities.friendsofquinn.com/share/c/45200/1505/awareness-olympics Tue, 23 Mar 2010 08:40:03 -0400 trc7880 The 6hr spin class this past sunday was awesome and great positive all rolled into one over 25,000 dollars was raised for the even as a whole and was one of the best experiances I've ever done can't wait to do more I hope to do a century bike ride this summer body willing this was challenging in every way especially for my feet but stuck with it and did the whole six hours was a little disapointed I couldn't get more coverage for it but the... http://communities.friendsofquinn.com/share/c/45200/1505/awareness-olympics http://communities.friendsofquinn.com/share/c/45200/1490/reminder Wed, 17 Mar 2010 07:48:17 -0400 trc7880 Hey guys I was asked to remind people on here when it got close to my radio interview well it's tomorrow morning at 8 30 am on my local radio station at 99 rock here's a link http://www.wfrd.com/ you'll be able to stream live if you have the internet it's going to be really nerve racking and fun at the same time I think. I'm talking to the show host tonight to go over some questions he might ask me which is nice it'll help me be a little less... http://communities.friendsofquinn.com/share/c/45200/1490/reminder http://communities.friendsofquinn.com/share/c/45200/1479/deletion-awareness Fri, 12 Mar 2010 21:06:47 -0500 trc7880 Starting on Thurs the 18th I will be on my local radio station 99 rock promoting the special olympics 6hr spin class called ride for a reason and I'm riding to support special olympics of vermont but I'm also riding it to help create awareness for 22q-11 deletion syndrome I'm very excited about this oppertunity please tune in if you can here's a link http://www.wfrd.com/ wish me luck too if you see this blog sincerly tom chase. http://communities.friendsofquinn.com/share/c/45200/1479/deletion-awareness http://communities.friendsofquinn.com/share/c/45200/1389/awareness Tue, 19 Jan 2010 19:24:24 -0500 trc7880 Hey guys I'm doing a 6 hr spin in march for the special olympics and to help raise awareness for 22q-11 deletion syndrome and nf(neurofibromatosis) here's a link it'll be held at the sheridon hotel in burlington vermont in case your interested. http://www.firstgiving.com/tomchase http://communities.friendsofquinn.com/share/c/45200/1389/awareness http://communities.friendsofquinn.com/share/c/45200/1350/2nd-stupidy-week-3rd Mon, 21 Dec 2009 21:42:22 -0500 trc7880 Going back to last week, (3 times so far)I got the coffee pot out got it already to make the coffee, and just left to go do other stuff, My brain just doesn't want to function right now, it's all just little stuff, but clearly my pain is affecting my normal routine, I feel really stupid Who goes through all the trouble to get the coffee pot ready to make coffee and just blanks to push the button today wasn't so bad my record is a whole hour... http://communities.friendsofquinn.com/share/c/45200/1350/2nd-stupidy-week-3rd http://communities.friendsofquinn.com/share/c/45200/1344/stupidity-week Sat, 19 Dec 2009 20:07:07 -0500 trc7880 We had been out all day off and on, the second time my wife and I left the house, I locked the door, like I always do, We get home about 4 hours later, find the door open not even shut all the way first thing we do is check to make sure the cats are home and the dogs are safe, We looked around and found nothing missing, Have a nice tv and decent electronics come to find out I must have just locked it opposite again, meaning unlocking... http://communities.friendsofquinn.com/share/c/45200/1344/stupidity-week http://communities.friendsofquinn.com/share/c/45200/1316/week Tue, 01 Dec 2009 17:03:28 -0500 trc7880 it's been getting better, I'm covering up more meaning warmer clothes, it's been very damp here in vermont, I had a good thanksgiving I drove like 2 hrs to massachusettes and visisted some extended family on my wifes side that we haven't seen in like two years, however it was pleasant it wasn't at the same time. I had a pain attack in my knee and foot right side felt like a party pooper, driving was the cause I believe plus it was cold in the... http://communities.friendsofquinn.com/share/c/45200/1316/week http://communities.friendsofquinn.com/share/c/45200/1309/rough-couple-weeks Wed, 25 Nov 2009 16:32:11 -0500 trc7880 These past two weeks have been really tough my computer is on the fritz I'm not thinking things out clearly I don't get it's been going great for months, I've been having these little momments more time than often where I know that my disabilities get in the way of my thinking I've been dropping tons of things all the time my neuropathy has been kicking in and out. I have those things called neuropathy twitches where I thought they had pretty... http://communities.friendsofquinn.com/share/c/45200/1309/rough-couple-weeks