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step to 22q-11 deletion awareness starts for me here and now.

by trc7880
Friday, March 12, 2010

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Starting on Thurs the 18th I will be on my local radio station 99 rock promoting the special olympics 6hr spin class called ride for a reason and I'm riding to support special olympics of vermont but I'm also riding it to help create awareness for 22q-11 deletion syndrome I'm very excited about th...

  • Radio Spot
    Eileen Bailey
    Saturday, March 13, 2010 at 02:46 PM

    Thanks so much for letting us know. Do you know what time you will be on the radio?

     

    Hopefully, I will be able to tune in and hear you. (You may want to post again closer to the 18th - maybe the day before to remind everyone)

     

    Eileen


    reply
    re: Radio Spot
    trc7880
    Saturday, March 13, 2010 at 02:50 PM

    yeah that was my bad it'll be at 8 30 in the morning that link is a direct link to the radio website too where you can stream live from the website


    reply
    re: re: Radio Spot
    Eileen Bailey
    Saturday, March 13, 2010 at 03:22 PM

    I put it on my calendar, but again, reminding me the day before might be helpful.

     

    Eileen


    reply
    re: re: re: Radio Spot
    trc7880
    Saturday, March 13, 2010 at 03:32 PM

    don't worry I'm posting it all over the place trying to get the word out trying really hard to raise awareness been tweeting about it too and posting it on facebook lol trying to get some other people involved too this would be substantial achievement even if I stayed on the bike for 5hrs taking only an hr break total here and there. getting my road bike in two weeks start riding on the road the weekend afterward. Going to be a great summer I hope.


    reply
    re: re: re: re: Radio Spot
    Eileen Bailey
    Saturday, March 13, 2010 at 03:39 PM

    Follow me on twitter: www.twitter.com/eileenmbailey and when you tweet about it I will retweet for you. (Just send me a message after you tweet it so I don't miss it.)

     

    Eileen


    reply
    re: re: re: re: re: Radio Spot
    trc7880
    Saturday, March 13, 2010 at 03:42 PM

    got ya hey thanks a lot I'm trc7880 with my huskie in the photo def let know when I tweet about my profile has some stuff I wanna do to.


    reply
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