
06/01/09
Is having a large heart dangerous after having VSD's that self closed?
(1 comment)
05/21/09
VCFS awareness at parades
(2 comments)
05/21/09
abnoids and nasal surgery w/Laryngeal web
(1 comment)
Health Interests
VCFS and 22q11.2 Deletion, CHARGE, LD, IEP meetings
Favorite FOQ Blogs
About Me
I have 3 boys, ages 11, 8, and 6. My 8 year old was born with 22q11.2 Deletion Syndrome (same as VCFS) and has had numerous surgeries, due to laryngeal web, mal-rotated intestines, and other medical problems. He also has bilateral colobomas. He is in 2nd grade now and doing well, although he is very small for his age and does have some developmental delays. He is a very special and lovable little boy. He loves his brothers very much and I am so proud of all 3 of them!
TV Shows
America's Funniest Home Videos
Quotes
as my 6year old says "my brain makes me do it"
