My Brave little boy

Related: VCFS

by vcf mom
Wednesday, April 29, 2009

When i had my son it was the greatest day of my life!! As days progressed i realized he was spiting up his formula out of his nose i then took him to the dr. and the dr. told me it was grade 4 reflux so he was treated for that for over a year soon it became time for him to talk witch i started noticing it was very complicated for him agian i took him back to the dr the dr then reffered me to childrens hospital were he was dignosed with a cleft pallet that is when he begin his first operation to recunstruck his pallet they done neck exrays and found a tumor the size of an egg in his neck witch was removed sucessfully ! We then started taking him to speech sessions in the hospital were the fist time we walked in to her office she asked me if she could test him for velocardiofacial syndrome i said yes they soon tested him before his next operation were the test came back that he did have velocardiofacial syndrome he has had a heart mumer and a place on his stomach that his muscles didnt grow right a beely button hernia also in and out of the drs with multiple phenmonias rsv and more over 5 operations i can say my little man has been threw a really rough time but he is doing very well still in speech theropy and is graduating kidnagartin this year.!!! I am So Proud of him ....